Addison was born with a Giant Congenital Nevus on her left leg. The journey is a struggle. Decisions are hard. We hope that Addison's experience can help others dealing with the same issue. While we know that there are others that are more extreme, we hope that in sharing her story, we can provide support and encouragement. Leave a comment, let us know you've been here.

Monday, August 5, 2013

These things will probably always be an issue

Addison is covered in satellites, moles of varying size, shape and color.  We have had the doctors look her over frequently, and feel pretty confident that they are all fine for now.  However, it was about a year ago (yes, I am that behind - oops!), that Addi came to me telling me some of the bumps on her inner thigh were bothering her.  She said they itched, and hurt.  So I checked them out - and had a mini heart attack.  It happens to the best of us. :) Two of her satellites were raised, and surrounded by red.

A call to the dermatologist later, and we were on our way to be checked out the same day.  That never happens - those doctors are in demand!  Dr. Vanderhooft looked Addi over carefully and came away with good news.  Something had gotten to the satellites and was irritating them.  Nothing to be overly concerned about.  She gave us some hydrocortisone cream to put on the spots to calm them down, and we talked about other options.

Still in my freak out state of mind, I told the doctor that I wanted them off, and she agreed that if it would make us feel better, that is the route we should go.  Dr.  Siddiqi, our amazing plastic surgeon agreed a few weeks later, and Addison was scheduled for surgery number 30.

Yes, Dr. Vanderhooft could have numbed Addi and punched out the satellites in question, but she does so much better with Dr. Siddiqi.  They have a relationship, and she trusts him.

Since that time, we have been more diligent in checking her over frequently for any changes.  I guess this is something that will always be an issue.  Nothing we can do about it.  I probably wouldn't freak out as bad if we were in that situation again, but those babies come off as soon as they start to bug her.

Sorry, no picture - I can't find them. :'(

1 comment:

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