Addison was born with a Giant Congenital Nevus on her left leg. The journey is a struggle. Decisions are hard. We hope that Addison's experience can help others dealing with the same issue. While we know that there are others that are more extreme, we hope that in sharing her story, we can provide support and encouragement. Leave a comment, let us know you've been here.

Tuesday, June 15, 2010

No swimming for the summer

When Addi had the expander put in her leg, the doctor left us with strict instructions and restrictions. The hardest being being that she is not to swim, and because of the placement of the expander, no wading in a pool either - too much risk of infection. Well, it's summer time and we spend a good portion of the summer in the pool. We found this cute whale that we hope will appease her while the others are swimming.  Sometimes, you have to get creative.

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