Addison was born with a Giant Congenital Nevus on her left leg. The journey is a struggle. Decisions are hard. We hope that Addison's experience can help others dealing with the same issue. While we know that there are others that are more extreme, we hope that in sharing her story, we can provide support and encouragement. Leave a comment, let us know you've been here.

Tuesday, June 15, 2010

Scheduling the next round

April 2009 came, which was time to schedule Addi's next round of surgeries.  So, we took her to the plastic surgeon get her next surgery scheduled. He was very happy with the way her leg looks, and he measured for a custom expander for the next round, which will go over her knee. While the doctor and I were talking, Addison started pointing to her leg and jabbering away. I am sure that she was telling the doctor exactly what had happened to her and what was happening next, although neither of us could understand a word of what she said. Glad that she isn't emotionally scarred from the last surgery. We were then scheduled for June 12 to put the next expanders in - it takes 9 weeks to make a custom expander. Wish I would have known that two months before, but oh well.

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